This is My Life

I was officially diagnosed earlier this year with chronic depression- early onset, which basically means I have had depression for as long as I can remember and it will likely keep coming back for the rest of my life. I hadn’t really pursued a diagnosis before this year because it seemed pretty obvious that I had depression and I didn’t need someone to tell me. But even with a diagnosis, it is sometimes hard to believe that this may never go away.

There are times when I am just so happy and at peace with the world that depression seems like a distant memory, hardly relevant to the joy I am experiencing. But the truth is, those exquisite moments of joy are possible because of the deep craters of despair that have come before them. This is my life. This is my reality. I am going to have moments of despair so strong that I forget anything good ever came before them. But I am also going to have moments of joy that are so incredible that I forget what pain feels like.

I feel like I am a pretty happy person. I love life. I see the good in it. I see the good in everything and everyone. I love people more than anything else in the world. But I wrote a post a couple years ago where I talked about drinking up happiness as much as I could when it came so that I could get through the next period of depression.

The last few months have been really amazing for me. I progressed so much mentally and emotionally that I felt like maybe depression was finally gone. All the self doubt and self hate and hurt from past experiences had all disappeared. I felt completely and totally whole for the first time in my life. But… I have chronic depression. So, it came back.

The point I am trying to make though is that sometimes having depression feels like trying to drink happiness through a cup with a hole in it. You do what you can to fill your cup and to keep it full, but it doesn’t always work. The thing is though, I have come to the point where I realize that it is okay. It is okay that I have chronic depression. It is okay that I have nothing to be sad about, and yet feel such deep despair that I cannot begin to describe the pain I am enduring. It is okay because I am alive. After everything, all the brokenness and lonely nights and heartbreaking thoughts, I am still here. I am still here to enjoy the sun on my face and the wind in my hair. I am still here to listen to the sound of rain outside my window and drink hot chocolate and watch fun movies. I am still here to experience all that life has and all that life is.

So, maybe in an hour, I won’t be able to get out of bed because depression grips me so tightly that I can hardly breathe. But in the moments that I am well, during the times when I can see the beauty around me, I plan to love it all as much as I can. I plan to find joy in the difficult situations and enjoy the good times. I plan to live because I am here for a reason. And whatever that reason is, I’m going to make it a good life. This is my life, and I’m going to love every minute of it.

 

Advertisements

Too Much

I am kind of an intense person. I am passionate about pretty much everything that I do. I think that a lot of people feel that I am “over the top” in my reactions to life. I am overly grateful. I express my appreciation and love more emphatically than anyone I know. I give too much and love too deeply and feel too strongly about things. I probably come across as a “goody two shoes” in church or in certain situations. I’m too open, too honest, too long-winded in my explanations. I often feel like I am just too much for people.

I feel like I have lost friends because of this. I feel like I haven’t been able to become friends with some others because of this. But I don’t know how to be anything else. I try to tell myself to tone things down, to not be so expressive or assertive, but it gushes out of me. Words and actions flow from me like water bursting from a fountain. 

I have stopped trying to suppress my natural inclinations to say something to another person or to do something for someone else. I have stopped trying to force myself to stay in a box I never fit into. And so, I am left with the alternative of simply being too much.

My Open Box

I feel like I live in a pretty protected community. That’s not a bad thing. Everyone is really nice and they are willing to help out when needed or asked. Sometimes though, I just feel somewhat out of place. I feel like everyone has their lives wrapped up in nice little boxes, not fancy or anything- I don’t feel like people around me are self centered or pompous. I just feel like most people around me are the stacked up boxes ready to be shipped out of the UPS store. They are “finished” and sealed up and ready to be delivered.

I feel like an open box. I don’t feel like a broken box or a messy box, just an open box. I feel unfinished. In a world where everyone seems to present the completed parts of themselves, I feel like I am somehow behind or missing something. Parts of me are being taken out and rearranged and put back in. Some things are taken out and replaced with better things. It’s just a constant process. I am in a constant process of change and growth. And I don’t see my box being closed up and ready to be sealed anytime soon.

Looking around though, I feel like maybe I am missing something? Maybe I am behind and still need to catch up to everyone else? Is everyone else really done, just with the possibility of being decorated a bit before they’re presented in their best state of being?

I have always been a little behind developmentally. I feel like I went through my teenage years in college, my single years didn’t really start until many years after I turned 18, and I am still working on the whole dating life and getting ready for marriage even though I feel like I should be ready to do those things by now. Is that all this is though? Is it just that I need to catch up to everyone else? Or is it that I haven’t figured out what I need in my box yet?

I guess my question really is when or if my box will ever be closed. Will I ever be done like so many others around me seem to be? Or am I just an open box sort of person, constantly trying to switch out my contents for the next stage in my life?

I know a few other people that are like open boxes. I see them growing and changing and rearranging themselves. I connect with these people. I understand them because that’s how I am. I just sometimes want to be a closed box. I want to be finished, presented in a nice little package for my next stage of life.

I get that we’re never quite “done”. We keep learning and growing and becoming better. I just feel like most of the people around me grow and then get to a comfortable spot and stay there for a while until something new comes along, then grow again and get to a new state of consistency and do it over and over again. And I just wonder if I am missing that consistency or if it is just that I will constantly be different from everyone else. Am I missing out? Or is this just another way of living?

Be a Weed

20170722_164855-1

I had a thought today as I was looking at the weeds in our grass. Our sprinklers broke a few weeks ago and the grass has mostly died, but the weeds are still coming up green. As I looked at those weeds (and the other weeds growing between the cracks in the sidewalk), I had the thought, “I want to be like that.”

It is interesting to me that weeds are the plants that are the most stable, grow the best, and stay the greenest longest. Weeds have deeper roots than grass and as such, are very hard to kill. Everything about weeds is great, except that they are weeds. If grass came up without much work and stayed green without much watering and would keep coming back no matter how many times it was stepped on, most people would be delighted.

So what makes weeds so bad?

The short answer is that they don’t fit in. The longer answer is that they look out of place with the rest of the lawn, and they are hard to get rid of, even with weed killing spray and digging deep to try to take up the roots.

Anyway, to get to the point…

Being a weed is not always a good thing, but it can be very good to have the qualities of a weed in a lot of life’s situations. I want to be like a weed because of their resilience. I want to be like a weed because of their boldness in standing out from a crowd. I want to be like a weed because of the deep roots that ground them when life gets tough.

Don’t be afraid to be a weed in difficult circumstances. Be a weed in standing up against injustice. Be a weed in standing your ground when others are asking you to compromise your morals or values. Be a weed in fighting depression or anxiety or health issues or other trials. Be a weed in coming back up when life knocks you down. Be a weed in having roots so strong in what you believe in that no matter how far someone digs, they cannot kill that part of you. Be a weed when your circumstances are not ideal, but you are determined to grow up strong anyway.

And perhaps most of all, be a weed in being okay with being a weed. Be okay with being different. Be okay with not going with the crowd. Be okay with standing up for yourself. Not everyone will love you for it, but sometimes being a weed is the best thing you can be.

20170722_164710

Light in the Dark

“Service activates the light”

-Tim Ballard

I went to a devotional tonight where Tim Ballard spoke about finding light in the darkness. Tim Ballard started the organization, “Operation Underground Railroad,” which exists to rescue children from sex trafficking. His job is basically going into the darkness and saving people from it. What he said tonight really resonated with me.

I don’t know why I took things so hard growing up. My life really wasn’t that bad. I’m pretty sure my siblings didn’t see things the same way as I did, or at least it didn’t affect them the same way. I’m not exactly sure what triggered in me all of the thoughts and feelings that followed.

What I do know is what I learned from it all. I learned to take care of people. I learned that everybody hurts and gets stressed and afraid. I learned to protect the people I loved and to bring light to the lives of the people around me. Serving other people is so ingrained in me that I literally cannot stop myself from trying to help someone.

My world growing up often felt chaotic and unfriendly. Part of it was autism and anxiety and depression, part of it was circumstances, part of it was past experiences, but I felt like I was fighting off darkness. I kept putting out light though. I tried to help and serve and do good to others. I remember tutoring people all through high school, joining clubs and participating in activities that helped others, doing things around the house to help my parents. As long as I was doing something for someone, I felt good. The darkness set in at night when the world was quiet and I found myself alone, but as long as there was someone to help, there was light. Like Tim Ballard said tonight, “Service turns the light on.” For me, service was my light. It gave purpose and meaning to my life.

I struggle with being myself. I struggle with loving myself. I used to think I was a horrible person. I used to hate myself. I used to think I never did anything right. Over the last few years, I have been able to change those thoughts. But they still come back. I still struggle to see my worth. I know I need to be good to myself. I know I need to love myself like I love other people. I know it is important for me to take care of myself. I’m just not good at it.

But serving people, loving people, helping people? I am good at that. It is hard to fight the darkness, but service gives me hope. Seeing light go into someone else gives me hope. When I can’t see light going into others, I lose hope. Someday I hope I can put light into myself, too. But for now, I am glad to realize that helping others can be my light in the dark.

Friends Forever

Having friends scares me. I love people so much, but it seems that friendships hardly ever last as long as you would like. I have had so many people who said they would always be there for me, that they would never leave, but they have been gone a long time. I still think about them and wonder if they ever think about me. Sometimes when someone says they will always be friends with me or they will never leave, the thoughts return of everyone who has ever said that to me.

Friends forever

Having friends scares me because I don’t know what I am doing right or if I am doing something wrong. I try to understand what other people need, and I try to be respectful of their needs. I try to be a good friend. I try to be myself, but not overwhelm them.

I used to wonder what was wrong with me, why I could never seem to keep a friend. I came to the conclusion that maybe people just don’t need me as much as I need them. Why be friends with me when they have other friends… better friends?

Having friends scares me because losing a friend is the hardest thing I have ever done. People think that autism or depression or anxiety or so many other things are incredibly difficult (and they are), but the most difficult thing for me is feeling like I am loved and wanted, then having that feeling taken away. You cannot miss what you have never had, but once you have something that makes you feel better than ever, taking it away leaves a gaping hole in your heart.

I wonder if forever friends are possible. I wonder if I am worth being friends with forever. My views of myself have greatly improved over the last couple years. I no longer hate myself. I see good in me. But when it comes to friends, I still feel hopelessly lost. I still don’t know what I am doing. Maybe I never will. But even though I have lost many friends over the years, I still hope that you mean it when you say forever.

When Someone Understands

My entire life I have dealt with not being okay. There are different reasons why I might not be okay- maybe it is too loud or too bright or too hot or there are too many people or there is too much going on or I am hungry or tired or anxious or just not okay for some other reason. Sometimes I do a pretty good job of getting myself to become okay again; other times not so much. I have learned over the years that there are times I simply cannot handle a situation in a positive way because of how I feel. I have also learned to find a way to escape when I feel this way so that I won’t do something I would regret. But, until recently, I was generally alone in figuring out how to deal with all this.

A few days ago I was at a family event that was overwhelming for me. I felt crowded and hungry and the noises around me seemed extra loud. I went to a chair in the corner of the room and tried to pretend like I was okay. I didn’t really expect anyone to notice or do anything. I was just trying to disappear into my head. But, my sister did notice. She asked if I was okay and if I needed to go to a quiet place to be alone for a while. She and her husband hugged me and told me that it was okay that I was having a hard time. They showed me where I could go to get away from everything for a bit, and while I was away trying to calm myself, my sister made me food and brought it to me.

It felt so amazing that I cried. I cried because people are starting to understand. They are starting to realize when I’m overwhelmed and need a break, and they are helping me. When someone understands it changes everything. It is easier to become okay again when others don’t expect you to be okay in the moment. If they get upset with you or frustrated or scared or react in a way that makes you feel abnormal, it invalidates your feelings. You get upset with yourself because you should not react in that way, you should be able to control yourself, you should not be overwhelmed by the situation.

I feel like I have pretty good self control. I can generally hold in a meltdown until I get to a place where I am alone. I can generally calm myself down enough to get to another room before I get overly upset about a situation. It is hard though. It is hard once you are not okay to do everything on your own to become okay. It is hard to be alone, yet that is often how we believe we must deal with how we feel.

Over the past few weeks, I have had a lot of times when I was not okay. But I have been amazed at the positive, helpful responses I have received in these times. Not everyone has responded positively, but a few people have let me be not okay with them for a few minutes so that I could get to a point of being okay again. It has helped me to become okay so much faster and be able to still participate because I didn’t have to leave before I really wanted to go. Maybe it is not always that easy. Maybe sometimes other people can’t really do anything to help, but if someone can understand, if they can let you know that it is okay to not be okay, that can change everything.

 

Voices of Special Needs Blog Hop

Welcome to Voices of Special Needs Blog Hop — a monthly gathering of posts from special needs bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo — from Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next month’s Voices of Special Needs Hop? Click here!