When Someone Understands

My entire life I have dealt with not being okay. There are different reasons why I might not be okay- maybe it is too loud or too bright or too hot or there are too many people or there is too much going on or I am hungry or tired or anxious or just not okay for some other reason. Sometimes I do a pretty good job of getting myself to become okay again; other times not so much. I have learned over the years that there are times I simply cannot handle a situation in a positive way because of how I feel. I have also learned to find a way to escape when I feel this way so that I won’t do something I would regret. But, until recently, I was generally alone in figuring out how to deal with all this.

A few days ago I was at a family event that was overwhelming for me. I felt crowded and hungry and the noises around me seemed extra loud. I went to a chair in the corner of the room and tried to pretend like I was okay. I didn’t really expect anyone to notice or do anything. I was just trying to disappear into my head. But, my sister did notice. She asked if I was okay and if I needed to go to a quiet place to be alone for a while. She and her husband hugged me and told me that it was okay that I was having a hard time. They showed me where I could go to get away from everything for a bit, and while I was away trying to calm myself, my sister made me food and brought it to me.

It felt so amazing that I cried. I cried because people are starting to understand. They are starting to realize when I’m overwhelmed and need a break, and they are helping me. When someone understands it changes everything. It is easier to become okay again when others don’t expect you to be okay in the moment. If they get upset with you or frustrated or scared or react in a way that makes you feel abnormal, it invalidates your feelings. You get upset with yourself because you should not react in that way, you should be able to control yourself, you should not be overwhelmed by the situation.

I feel like I have pretty good self control. I can generally hold in a meltdown until I get to a place where I am alone. I can generally calm myself down enough to get to another room before I get overly upset about a situation. It is hard though. It is hard once you are not okay to do everything on your own to become okay. It is hard to be alone, yet that is often how we believe we must deal with how we feel.

Over the past few weeks, I have had a lot of times when I was not okay. But I have been amazed at the positive, helpful responses I have received in these times. Not everyone has responded positively, but a few people have let me be not okay with them for a few minutes so that I could get to a point of being okay again. It has helped me to become okay so much faster and be able to still participate because I didn’t have to leave before I really wanted to go. Maybe it is not always that easy. Maybe sometimes other people can’t really do anything to help, but if someone can understand, if they can let you know that it is okay to not be okay, that can change everything.

 

Voices of Special Needs Blog Hop

Welcome to Voices of Special Needs Blog Hop — a monthly gathering of posts from special needs bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo — from Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next month’s Voices of Special Needs Hop? Click here!

Struggling

“I’ve been struggling.”

This is not a common phrase you hear in most conversations. In general, people keep the fact that they’ve been struggling to themselves or maybe one or two close friends or family members. We just don’t like to admit that we’re having a hard time because we’re supposed to have it all together.

However, this phrase has become more common to hear in my conversations. I have reached a point in my life where I need to admit that I’ve been struggling. I need to tell someone because I realize that I can’t do this alone.

At work I have needed to admit I’ve been struggling quite a few times over the last year or so. In my previous job, I discussed with my boss how I had been struggling. I explained to him how I felt so that he could understand when I didn’t do everything 100% like I used to do and so that if a situation arose at work, he would know how to handle it. In my new job, I have needed to admit that I’m struggling to keep up because I don’t know how to do everything quite yet and I’m not as fast as someone else might be.

With my friends, I talk about my struggles fairly openly because I need them to know when I’m not okay. I need someone to be there when the struggling becomes too much to bear. I have been pleasantly surprised that some of my friends have also been open with me when they are struggling.

This life can be hard. It can be so difficult that I wonder what I’m doing here or if it’s even worth it. But I think these conversations are necessary. I think they are good steps towards an environment of open communication and trust. So I hope that we can all say we’ve been struggling to someone when we have a hard day or just don’t know what to do, because we all struggle at some point. We just have to decide if we want to do it alone or if we’re willing to let someone help us in the journey.

Don’t Look Up to Me

Don’t look up to me.
You think I’m strong for talking about mental illness?
The way I get away with not talking to anyone about what I go through is by telling everyone what I go through. I use this blog as a shield to keep me from having to really trust anyone.

Don’t look up to me.
You think I don’t get angry?
The only reason I don’t get as angry anymore is because I’ve consigned myself to bad days and lost promises and disappointing circumstances.

Don’t look up to me.
You think I am strong in my faith?
My faith is only strong because I need it so badly. I couldn’t find a reason to life if I didn’t believe in something better.

Don’t look up to me.
You think I’m smart?
I was born with above average intelligence, but below average social skills. Believe me, you don’t want to be trapped in your own body.

Don’t look up to me.
You think I have a way with words?
I can only form a sentence after much thought and consideration. It’s not a talent, it’s a deliberation.

Don’t look up to me.
You think I’m kind?
Sometimes I feel like I’m only kind for selfish reasons.

Don’t look up to me.
Mostly just because I am only me.

Who Am I?

I tried so hard and gave so much that I lost myself by giving myself away.
So I looked at everything I’ve done,
And I found myself again.

I am love and affection.
I am kind words and handwritten notes and small acts of kindness.

I am loyalty.
I am the refusal to gossip about you, the defense of your innocence, the friend when you need to talk.

I am honesty.
I am the dollar back in extra change, the wallet returned to its rightful owner, the locking of a cabinet that’s left unattended.

I am dependability.
I am the $5 when you forgot your wallet, the volunteer when you’re looking for more help, the willingness to step in when someone can’t do their assignment.

I am service.
I am the bowl of soup when you’re sick, the ride when you need a lift, the extra hand when you’re moving apartments.

I am forgiveness.
I am the hug after I hated you, the second chance when you lost my trust, the friendship even after you hurt me.

I am responsibility.
I am the acceptance of blame when I could have done something different, the solution to a problem that you didn’t ask me to solve, the completion of chores that need to be done around the house.

I am gratitude.
I am the sincere thank you after you worked hard, the card for the little things I notice you do, the flower on your porch to show I appreciate you.

I am patience.
I am the wait until you’re ready to talk, the consistent friend until you feel better, the perseverance when you have been struggling for a long time.

I am faith.

I am the comment in church, the testimony that strengthens yours, the prayer for you when you are struggling.

I am friendliness.
I am the smile when you pass by, the hello when we make eye contact, the help when you’re looking for something.

I am caring concern.
I am the inquiry about your health, the genuine interest in your family’s wellbeing, the persistent nudging for you to get the help you need.

In the end, maybe it is all the little things I have done that make me.

So I find myself by looking at who I have been to everyone else.

Forgive Yourself

I think the hardest thing for me is to forgive myself for the things that are not my fault- to forgive myself for being different, to forgive myself for not being able to make friends easily, to forgive myself for everything I want in life that I just can’t do right now.

We have to learn to forgive ourselves for the bad things that happened to us, for the things we wish we had control over or we wish we were stronger to be able to stop from happening. I have to forgive myself for being so lonely, for not making the friends I wanted, or for not reaching out or knowing how to talk to the friends I did have. I have to forgive myself for the times people took advantage of me or made fun of me or hurt me. I have to forgive myself for being me.

I have hated myself for my disabilities, for my mental illness, for my speech impediment. I hate myself the most for the things I have no control over.

Why do we do this to ourselves? Why do we tear ourselves down for the things we cannot do?

If you were raped, you couldn’t have stopped it. If you were abused or bullied, you couldn’t have ended it sooner. If you have been lonely and friendless, you couldn’t have made friends any faster. Because if you could have done any of these things, you would have. No one likes to be hurt. No one wants to be lonely. No one wants to be an outcast or to feel like others don’t understand.

Forgive yourself for the things that are not your fault. Forgive yourself for the things you hate about yourself. Forgive yourself for everything that hurt you. Maybe then we can find the healing we need to love ourselves.

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A New Resolution

People have been asking me over the past week what my new year’s resolutions are. Up until this point, I have been in survival mode. I wasn’t thinking about the year… I was simply trying to get through the day. But today, the dust seems to have finally settled, and I discovered the one thing that I really want to do this year.

I simply want to be myself.

I spent so much of last year being sick, either physically or mentally, that I just couldn’t do the things I wanted to do. I couldn’t talk to people. I couldn’t exercise or play sports. I couldn’t smile. I couldn’t do little random acts of kindness. I couldn’t help around the house. I did some of these things anyway, but it took everything out of me.

This year, I want to enjoy being me. I want to go running just because I feel like it. And I want to talk to new people at church. I want to bake a cake and make cookies and get dinner ready, just for fun, just because I can. And I want to wash dishes and do extra laundry loads and vacuum. (Oh how I want to vacuum!) I just want to be able to do all the things my illnesses prevented me from doing.

You don’t really realize how precious those things are until you lose them. Having depression made me miss exercise so much. Breaking my thumb made me miss simply being able to tie my own shoes. Having anxiety and depression made me miss just being able to have a normal conversation with someone. And my health issues and depression made me miss being able to maintain a clean house.

So, though it may not seem like much to an outsider, I am excited to be able to do the normal stuff this year. And my resolution is simply to enjoy doing it because I have waited so long for this moment.

Deserving Love

I used to think that if you were loved, you must deserve it. I thought that in order for someone to love you, you had to have done something worthy of love. Love wasn’t just given freely, it came with a price. I wasn’t sure what that price was, but I thought that only truly good people could be loved.

I heard people say to “love the sinner and hate the sin.” I knew that people in church expressed their love. I heard the words, I love you. I just didn’t see it. I didn’t see where love lasted past someone doing something wrong.

Last night, I kind of understood what love really means. I was at my brother in law’s family’s house. I have always loved being in their house. It just feels good. It feels like love. Up until this point, I thought that everyone in his family just deserved to be loved because they were so good. Last night though, it struck me that it wasn’t what they did that made them loved. They are simply loved because of who they are.

They have this tradition on someone’s birthday where they go around the room and say things they love about that person. I have been there for a few of their family members’ birthdays. I am always amazed at how loved each of them is. As I sat there listening to the things they were saying, I finally understood that love isn’t a one way path.

There is no one thing you can do to deserve love. Each person is different and unique and has different things about them to love, but each person deserves love simply because they are. It is not the deeds that qualify a person for love, their simple being means that they are worthy of love. You just have to look for the part of them that you can love and then love them because of that.

I haven’t felt loved for a lot of my life. That wasn’t because I was not loved, it was because I didn’t understand love. I thought that anger meant hate. I thought that I could never be loved because I would mess it up. I felt love and affection at times, but other times, I felt unlovable. It seems strange, but I sometimes even thought that I was too unworthy to even deserve to be punished. When I did something wrong and didn’t get the treatment that one of my siblings received, I felt like I was so far gone that I wasn’t even worth correcting.

My friends don’t understand. They tell me they love me and wonder why I doubt it or why I seem to think that changes. I thought that was how love worked. I thought you loved someone until they did something to make you stop loving them. I was never sure what makes people stop loving you. So anytime I made a mistake or hurt someone in the smallest way, I worried that their love would be taken from me.

I don’t know how long this feeling will last. I don’t know if I have really internalized that love is simply given, not earned. I can’t say that I’m going to stop asking my friends if they still love me. I do know that I have been changed though. I know that I’m a little closer to understanding what love really means. Someday I hope to understand a little more. Someday I hope that I can know that I deserve to be loved, not hurt, and that I realize that love isn’t a reward; it’s a gift.