You Are Never Ready For Grief

Before my nephew died, I felt like I was the person I wanted to be. You know those things you tell yourself, like I don’t know how people don’t get road rage or how do people not get upset when something bad happens. I was at that point in my life where I saw past the now and let things go. And I saw people, really saw them. I was a terrible anonymous giver because everyone knew it was me. And for once in my life, I didn’t feel like I had to be anonymous. I was just confident and content with who I was.

But nothing can prepare you for grief. When it first happened, grief was so full that it was constant emotions bubbling out of me. At that time, I would say that grief was love with nowhere to go. Then came the pain. It was just so hard to not think of what I could have done differently. Despair and sorrow took hold, and I felt lost. That’s when I went numb. I just wanted to forget about everything. I wanted to not feel so much. I wanted to disappear, and I did for the most part. I went to a different place, where no one knew me as the giver. I didn’t feel like reaching out or being known.

It still feels like uncharted territory. I am slowly letting myself feel more even though it is hard. I feel like I have tried to drown my grief with stuff. I have tried to hide from it through work. I have tried to run from it through busyness. I have tried to forget about it through fun. The only thing I haven’t done is try to embrace it through vulnerability. That is what I used to do with depression. I used to write about it and talk about it because as long as I was letting someone else know, I would not be alone if I failed.

Grief is a whole other world. Sometimes it hits you out of nowhere, and you cannot remember what it felt like to be whole. Sometimes you find yourself shaking in sobs without anything to set it off. I think though, that at some point, you have to let yourself feel it because it will never get better if you don’t. The reason I am writing this post is because I did feel it tonight, and even though no one reading this is around, sometimes it just helps to not feel it alone.

My Christmas Struggles

This Christmas season has been difficult for me. I have been struggling with feelings of anxiety and inadequacy. I enjoy giving gifts. That look when someone’s face lights up because they feel seen when you give them a gift unique to them is one of my favorite things. This year though, I realized that my gifts have not always been the best or were not really what the receiver needed or wanted. I have adjusted to this and tried to limit my gifts to experiences or something useful instead of just something I feel the person would like. And I have given gifts outside of Christmas because what was the point of waiting till Christmas if the person was not going to like the gift anyway? So the giving part of Christmas has been harder this year.

In addition to that struggle, I had to work more this year than I have in the past, which meant that I could not join my family for Christmas. This was especially hard because my nieces and nephews could all be together this Christmas, which does not always happen. I still had my sister and friends, but it was hard not to long to be with the rest of my family.

I have not let myself think about those things because there has been so much to do around the house and with work. I finally broke down last night though. I wanted to message my friend to thank her for having us for Christmas, but all of my fears and anxieties finally bubbled to the surface. I found myself unable to stop crying or calm down. Knowing I needed peace, I turned to the story of Christ’s birth in Matthew 1-2 and Luke 1-2. Reading these chapters calmed my mind and I was able to drift to sleep.

I don’t know why I am sharing this other than to let people know they are not alone. If you are feeling anxious or lonely or inadequate this holiday season, it will not always be this way. Someday we will be okay. Someday we will find ourselves. Someday we will not be alone. I do not know when that day will come for me, but I have hope that I will be ready for it as I work towards healing and growing. Maybe I am not okay right now, but that does not mean I will always be this way. I can find healing. I can find hope. And I can keep telling myself I am enough until someday I believe it.

Nightmares

Do you ever have a dream where you are your own worst nightmare?

I had a dream where I got stuck in an elevator. For some reason, I had a stroller in the dream. I had just gotten off a plane and taken the shuttle to the main area. I had to take an elevator because of the stroller. The elevator was packed with people and strollers and children. For some reason, I was going to the 4th floor, while everyone else was going to higher floors. When the elevator stopped on the fourth floor, I became anxious about how to get everything out with me. I knew I had to get my bag and the stroller, so I thought I would throw my bag out of the elevator and then turn around to get the stroller.

Unfortunately, the elevator sensor registered the bag I threw out and proceeded to close. I panicked that the elevator was moving and pressed the stop button. I then bypassed the safety system and opened the elevator door to find I was no longer at the door where I needed to exit. The other passengers were angry with me. They called me stupid for thinking I could stop the elevator and get out. They wanted me to close the door and get the elevator moving again. Unfortunately, it wasn’t that easy to put everything back and fix the elevator by myself. We were stuck while I tried to fix my mistake and call maintenance for help. When the elevator did get moving again, I was questioned by security and my bag and stroller were searched for bombs. After deciding I was not a terrorist, security let me go to find the contents of my bag dumped out from their search.

Anyway, the point of this story is that I do not feel ready for the next stage of my life. I know most people do not see me as autistic. My family and friends feel I am ready for the next step in life, to start dating and get married and have children. I am not so sure that I am ready. I worry that I will not be able to handle the added stress and pressure.

I do want children and a partner someday, but I also question if I will ever be ready for that. Can I handle doing multiple things at a time like moms have to do? I have heard others say that people with autism cannot handle a lot going on. I can handle a lot going on, but only if it is structured. When things lose their structure, it is difficult to handle all the changes. Will I be able to handle the difficulties of motherhood and the constant changes and interruptions that come with it? Or will I find myself in a constant state of being overwhelmed and unable to care for myself, much less a child?

Being Alone

We all want to feel safe, loved, and wanted.

My sister was away for a couple weeks visiting family and friends, so I was home alone with our pets. And even though I have been doing really well mentally for a long time, there is something about being alone that reminds me how painful life can be. I think I’m doing fine and then I’m alone and all I want is to hurt myself to get out of my head.

I am on an antidepressant that keeps me from thinking about suicide all the time. Prior to starting this medication, I thought about dying almost every day for as long as I can remember. It didn’t matter how good life was, the thoughts were always there. But it has been years since I have had those thoughts consistently. The thoughts can come back when I am alone though. Luckily, my medicine keeps me from being in danger when I am by myself, but it can still be hard.

No amount of medication can make up for interaction with other people. We need that human contact. We need hugs and attention and love. You just can’t close yourself off and still be okay.

I still sleep with a stuffed animal every night because it reminds me that I’m not alone. I’m not sure what I’d do without it because being alone is the hardest thing I’ve ever done. But feeling that softness and thinking of the person who gave it to me reminds me that this is just a moment. No matter how painful the moment feels, I know I can be okay again because I am loved. I am not alone. And things will get better.

Something Good- Day 141-142

I did not feel like posting last night. I felt hurt and depressed and just could not think of something good. I have learned, though, that most things get better in the morning. I know that if I can just fall asleep, tomorrow is a new day. Luckily, I fell asleep relatively quickly last night and woke up in better spirits.

We packed our bags and gifts tonight to take to my brother’s house this weekend. I am looking forward to spending time with my nieces and nephews again.

Finding Hope

Grief is one of the hardest things I have ever had to experience. There are so many dimensions to grief. Sometimes it will come out of nowhere and swallow you whole. Other times it is just on the surface and the smallest reminder will make it come out in suffocating waves.

I have contemplated suicide for as long as I can remember. I am not sure why I am this way, but I have found a medication that helps me. For some reason, my brain just doesn’t work the way it should on its own.

Anyway, I have been reading a book about finding hope after suicide. My sister bought it for a friend, and I decided to read it first to see if it would be appropriate to give someone else. It brings up so many emotions in me, both because of the grief I am still trying to navigate and because of my own thoughts and experiences with suicide.

Right now the book is talking about healing. The author said that when she was a child, she felt like she had to bury her feelings to be strong. Her therapist challenged her to start sharing her feelings in order to heal from the traumatic experiences of her childhood.

A few years ago, I talked about abuse I faced as a child that I had never told anyone. I wrote about it on this blog and told the person I trusted most at the time, someone who was quickly becoming my best friend. It was hard to share something so personal. My parents were shocked by my experiences. And it caused some ripples in the next few family gatherings with accusations about why it was allowed to happen. I did not blame my parents for what happened, especially because I was too ashamed to tell them. But it was healing to finally tell a secret that I had been hiding for years.

As this book talks about sharing the story of her mother’s death, I feel emotions that I have not felt in a long time. I wonder if I still have hidden demons that need to be uncovered to fully heal. I wonder if I need to talk more about my nephew’s death to cope with the grief that surrounds me. I wonder if I need to reveal more of my deepest secrets to fully recover from all the wounds I hold within me.

I have discovered over the last few years that healing is not easy, but allowing ourselves to be vulnerable can make us into much better humans than we thought possible. Healing allows hope, and hope can lead to love, and love can mean finding happiness even if the midst of painful experiences.

A few years ago, I felt like I was finally the person I always wanted to be. I was able to help people without feeling guilty or unworthy. I was patient and forgiving when others made mistakes. I could stand strong in difficult circumstances because I knew where I stood. That all disappeared when my nephew died and I moved to run away from the memories. I shut myself off from the world again because some things were just too painful to talk about.

I think that now is the time to heal again. Now is the time to talk about hard things and learn to hope again. I can find hope in my difficult experiences by sharing the things that have hurt me and allowing myself to trust in ways I have forgotten. 

Something Good- Day 87-89

Social distancing and Idaho’s stay-at-home order means that I need to stay busy to avoid getting depressed. I am very grateful that I do not live alone because that would make this nearly impossible for me. Over the last three days, we have been playing games, cooking and baking, and watching movies and shows.

I have a lot of games that I have never played. This extra time at home has given us the opportunity to try these new games.

We have also used some kitchen gadgets for the first time. My sister used our mixer to make gluten free bread, which I later turned into bread pudding. Then we used our potato crisper to make homemade potato chips. We are planning to try making apple chips with it as well.

Overall, we are doing well with our social distancing efforts. I called my siblings to check in with them today and texted a couple friends. We avoided the crowded grocery store yesterday and just got a few essential things at a smaller store. My bank has implemented a 10% cash back reward for restaurants, so we have used the drive through for a couple fast food restaurants to help support them at this time. I am staying active by using the elliptical machine we bought a couple months ago. So far depression has only consumed me over a couple minutes in the last week. I think that as long as I keep active and take care of myself, things will all be okay through this.

A New Year

I did not have a good year in 2019. I was angry and upset and disappointed and frustrated with life and people and God. I still don’t understand, and I still have a lot of grief and anger and conflict to resolve. But I decided to stay up last night to welcome in the new year because I want it to be better. I want to make some changes, and I want to be happier.

I have been through a lot of changes in the last 10 years. I have gone from getting off antidepressants because I felt like they did nothing to taking an antidepressant that made me more depressed than I had ever been before to finding one that actually helps and prevents me from having constant suicidal thoughts. I have been through all the range of emotions from the happiest I have ever been to the saddest I have ever been. I have felt more loved than ever before and have been overcome by my emotions several times. I forgave people I never thought I could. I got to the point where I didn’t get angry or yell when my brother accidentally scraped the side of my new car. I made significant changes to my life and became the person I wanted to be.

Then, I spiraled down into grief and depression and physical pain like I had never known before. And it was hard, and I was hurt and angry. And it eventually got to the point where my reservoirs of faith and hope and joy were depleted, and I was not sure where to turn or if I believed in anything anymore. And I am still at that point in a lot of ways.

But… It is a new year. I watched a video this morning where Kristina Kuzmic challenged people to write down a specific good thing that happens every day. She said it changed her life and helped her find the positives even in days that were terrible. I need that in my life. I need more positives. So, for the next year this blog will be turning into a space for me to put down something positive from every day because I need it, and maybe it will help someone else along the way, too.

Suicide Prevention Day

Today is World Suicide Prevention Day. I wanted to say something about this because it’s important, and people need to know that there is no shame in having these thoughts or in seeking help. But on the other hand, it almost seems like a foreign topic to me. It feels like a forgotten language or past life with which I can no longer connect.

For the longest time, suicide was my biggest fear. I was afraid that one day I would not be strong enough to hold back the urges, and I would lose my fight with suicide and chronic depression. Suicide was the single most constant in my life. For as long as I can remember, I wanted to die. It is the subject of many of my earliest memories. And I don’t know why.

But now that I am on an antidepressant that inhibits depression and suicidal thoughts, they come much more rarely and even then, as fleeting moments that last no more than a breeze of wind passing by. Suicide is no longer a constant in my life. Part of that is due to therapy. Another part is due to friends and loved ones. The last part is due to antidepressants and personal choices to take care of myself.

Each part has taken years to build to get me to this point. And I guess the point of all this is that it is possible. It is possible to go from years, even decades, of suicidal thoughts to it being little more than a memory. I don’t know how it happens. For me, it was a million little things that led up to this point. It was friends and family and therapists and counselors and medications that drove me past of the point of insanity to medicine that changed my thoughts in ways I never knew were possible.

As someone that once contemplated suicide on a daily to hourly basis, I just want you to know there is hope. There is hope that it won’t always be this way. It may not feel like it now, but things really can get better. You just have to make it through this. And please know you don’t have to be alone. You don’t have to do this alone. It is never too late to reach out and get the help you need to feel better.

Hangry

Last week was an especially difficult week emotionally. I had multiple breakdowns a day and just struggled to control my emotions several times throughout the week. By the end of the week, I realized that this was not simply the result of inconvenient timing of mood swings but was instead directly correlating to my eating habits. The longer it took for me to get food, the more aggressive and anxious I became.

I have always known that I struggle with handling needing food. I can tolerate hunger and can go without eating for a while without issues, but if I do not get food when I am expecting to eat, I lose self control. I lash out and have even injured myself at times. This probably sounds a bit extreme, but I looked up a couple articles about “hanger” and aggression around hunger. The ones I found most relevant explained that low blood sugar can decrease serotonin, which increases stress and affects the ability to regulate your mood.

As someone who already struggles with serotonin levels and mood regulation, this can easily send me over the edge. I remember as a kid, kicking myself off a bed because I was so hungry that I didn’t know what to do with myself. The biggest problem with all this is that it is difficult to provide food for yourself when you get to that point. Trying to cook something when your brain isn’t working leads to more anger and frustration because the process takes too long or is not going as planned.

At this point, I have realized as an adult that I have three options. I can withdraw myself from the situation until my body tires itself out and I no longer have the energy to be aggressive, or I can try to maintain self control just long enough to get something to eat, or I can allow things to get to the point when I explode and am at risk of hurting others or myself. I can’t tell you how many times I have experienced these problems as an adult, much less as a child. Granted, as a child, someone else was mostly responsible for providing food for me, but I had less control about how or when that food came.

I think it is interesting to note the differences between what we expect of children and adults. Often when we become most frustrated with how someone is acting, there is probably a physiological component to their behavior. Maybe they literally cannot just keep calm and carry on. Maybe they cannot communicate their needs. Maybe they cannot provide for themselves in the ways we expect. The difference between children and adults though is that we expect the child to learn to do these things and the adult to know how to do these things. But maybe instead we need to focus more on why things are happening to help prevent the physiological reaction because at that point, it is too late in many ways to avoid unwanted reactions.